Supporting caregivers

The care partner’s journey

A diagnosis of Parkinson’s disease (PD) is a life-changing experience not only for the person with PD, but also for the spouse, child, other family member or friend who becomes the person’s primary care partner. Care partners take on many different responsibilities — from accompanying a loved one on doctor visits and grocery shopping to more demanding ones like providing physical care. At the same time, you may be working, raising children, caring for grandchildren, or coping with your own health or personal issues.

Because PD progresses slowly, the care partner’s role can last for decades. This journey can bring rewards, but it can also bring difficult times. It is important for every care partner to remember that taking care of oneself is not the same as being selfish. By renewing their own energy and staying healthy, caregivers can better support their loved one who lives with PD.

Caregivers need care too

Research shows that care partners in general, not just those who care for loved ones with PD, face risks to their own physical and emotional health. This elevated risk can show up in a higher-than-average incidence of heart disease, high blood pressure, and visits to the emergency room. Care partners have been shown to experience decreased immunity and sleep deprivation. Lack of sleep can lead to irritability and frustration. In addition, care partners experience higher-than-average rates of depression, anxiety, and grief.